A single mother who has been on a “rollercoaster” ever since her son was diagnosed with cerebral palsy is launching a group to support others like her.
Nerea Rodriguez, of Corbins Lane, South Harrow, is a full-time carer to her son, Saeed, who has cerebral palsy and is severely disabled.
The three-year-old was born when his mother was just 24 weeks pregnant, but despite fighting through those precious first few months, he was left with a host of health issues.
After Ms Rodriguez and Saeed’s father got divorced, she was left lonely and struggling to cope with the demands caring for a disabled child brings.
She said: “It’s hard but I have to keep on fighting for my only son. There’s nothing else I can do, it is what it is and nothing will change that.
“It’s a stressful roller coaster of ups and downs, every second is precious and every day is different. My life in the last three years has been a whirlwind of hospitals, doctors and tests.
“It’s a lot of responsibility and I feel so alone. I want to be able to share my concerns with people who understand.”
Ms Rodriguez began enquiring about support groups for parents in similar situations but only came across Harrow Carers Group.
Instead, she took matters into her own hands and decided to launch a group herself, exclusively for parents of severely disabled children.
Saeed is unable to sit, move, crawl or use his head, is non verbal and his family are unsure whether he will ever learn to speak properly.
Ms Rodriguez had to quit her job as an air hostess to care for him full-time.
She said: “It’s my chance to meet other parents and to help them. We can give eachother comfort.
“It’s still in its early stages but I’d like it to grow into something much bigger.”
For more information, visit www.facebook.com/walking2gethersupportgroup